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At 1:11pm on April 28, 2009, Mandy Lawrence said…
Afternoon Jill,

Hope the health visit is of use and you get your stairlift and anything else that will help. Let me know how that goes.

Have been umming and arring about Twitter. Thanks for link will prompt me to take a look for myself.

In all honesty Jill, I think Dad is as much playing games as he is ill. What he wants is for things to be done for him whilst he does nothing for himself. I understand depression (and some) but know that dealing with my own depression means that I have to get off my jacksie and do what I can. There are times when I can't...and don't...but I don't expect others to do for me when I am like that. Although a bit of help doesn't go amiss.

Have decided that if Dad doesn't go to the CPA meeting, I will and I will say I am here to let the team know that whatever Dad does or doesn't do is between him and them and that I am not to be used as a scapegoat and I can't provide the care for him inthe absense of services. After that, I will deal directly with my MP viz a vie asking him for direct action to stop them dumping on me.

And then I will be going away for a while..therefor not accessable to any of them.

Heading off to local shops now and then to the garden.

Catch up later
At 8:38am on April 27, 2009, Mandy Lawrence said…
Hi Jill

You know I really hope they don't get away with it forever. I'd like to think that the further cuts in public spending will mean the end of the incestuous management breeding management cycle...but I reckon these slimes have got feathering the nest down to a fine art. Gotta live in hope though.

Had a couple of days in hibernation due to 'joys of womanhood' but have resurfaced feeling better. I even mowed the front lawn yesterday and continued with my creative corner, in the garden.

Saw Dad both Saturday and Sunday...Saturday he was all angry about everything. Telling me he felt bullied by what was going on with (or not) with services and he didn't want to go to his CPA review meeting. I said "Is your choice Dad". Is about time he actually started to make some choices for himself. Although, if he plays more avoidance games will only mean services dumping his care back on me and I ain't having that. Yesterday, he seemed less angry and actually polished off 3 quarters of a cake I took round. Problem is with these bursts of energy, of his, is they don't last long and the frustration side of things is usually vented in the wrong direction. Did advise him to tell his care time what he thinks but bet he doesn't!!

Have cut back on lozee use again...as was creeping up and I don't want to keep taking more and more of the things and still feeling wiry. Will discuss that with GP, along with outcomes of last blood test, when medical records have been transferred.

Have also been clearing out my closet. Well actually, my bedroom. Is a mammoth task and need to wait for dustmen to empty bins before I can continue but am on the right track.

Today, well as I have been up since 6 and done a few bits, thinkI will go back for a snooze and then, weather permitting, heading out to the garden with Suki and latest book.

Hope your tummy has settled down again and your Monday is a bright one.

Bye for now
At 9:39am on April 24, 2009, Mandy Lawrence said…
Morning Jill

I get what you mean about the video. Is most probably a case of human curiosity...leading to realisation that no major responsibility is necessary and therefore taking part won't compromise their sensitivities. Oh cynical me!

Think what I will do is a total invoice, which covers everything I have done that should be the remit of MH services.

What if every family member/carer did that? Services would be bankrupt. I think some are pretty close anyway...although is hard to know where the money has gone!!! On the rumour circuit....it seems that whoever merges with this MH Trust will have it for life. As in it will be another Trust actually managing this one for an indefinate period. People think it couldn't be much worse than it is...but there is that old saying that just when you think it couldn't get any worse, it does.

I think it is a case of a lazy culture evolving through mis-management and is going to take more than a new management team to sort this one but you gotta live in some hope that things can improve...or run away! Ha! Ha!

Glad things went well yesterday.Teacakes will do me fine.

Sorry things still not resolved for Richard. Maybe next week eh? Do hope so.

Starting to get my act together with intention to spend day in garden with card stuffs so heading off for a cuppa etc.

Bye for now
At 8:41am on April 23, 2009, Mandy Lawrence said…
Hi Jill

I think the robot vid is brill. Puts me faith back in human nature (for about 5 minutes Ha! Ha!)

Hope you had a lovely time in the garden yesterday and a good time was had by all when Claire came round to celebrate her birthday. Did you have cake? And is there any chance that a slice has been left for me? I could really do with a sugar hit right now :>)

Was quite manicky yesterday. I think the ruddy meeting with the combined useleness of the social care and MH teams did me in a bit. They kept trying to dump things on me and it was very clear that the social worker was more than happy to sign Dad off. He now has to get his care provided by the private sector. Ho hum!

The only positive to come out of the meeting was that we are going to look at a more supported accomodation for Dad with carers about from 6.00 am to 12.00 pm. Although they were trying to put the owness on all the subsequent form filling on me. No way...that is the job of his care co-ordinator..who is totally useless. There was another problem with Dad's meds yesterday and she said she would sort it out but she hasn't. I have ended up giving Dad some of my lorazepam to last him till things get sorted but honestly Jill, if it wasn't for Dad I wouldn't waste my time trying to deal with these cretins.

I am getting to the point where I would rather disengage from all of them and just get lorazepam from my GP.

I went back in the evening to give Dad the food that came with my shop. I buy his bits for sarnies and such like and stayed with him a while.

I dunno...part of me thinks he should live with me because I am the only one who gives a stuff but I know we would most probably both go under together. Is so difficult.

Anyway, have got a busy afternoon ahead of me. Going to get my prescription glasses and some front line for Suki and friend's birthday present and then veg out and let the world go by.

Bye for now
At 8:39am on April 22, 2009, Mandy Lawrence said…
Morning Jill

Sorry you spent Monday frustrated by technical things. You were good to stick with it and try and get things sussed. I am not patient with my pc when it plays up or if I have to do things on my pc that are slightly complex.

I did look at the link but at present am not in right place for moving bits around. I know my page needs a revamp. Think I could do with one too. Ha! Ha!

Have spent afternoons in the garden, reading. Making the most of the lovely weather.

Had friend staying with me for 4 days. That got a bit too much. I am awful really but I need alot of personal space. So when I got my home back for me yesterday felt like a breath of fresh air. Also Debs with the goats, rang me middle of the night Monday to tell me that Skippy had ripped his horn off whilst she was out and then gave me graphic description of the situation. Not a pleasant thought to go to bed on. However, he has made it through the worst and I actually think he is alot tougher than she or the vet seem to think he is. Will be going to see her on Saturday so will judge for myself.

Had pretty pro-active day yesterday. Got to the health check at the new GP practice. That went okay. No more blood tests needed as they will check the ones the psychiatrist took. Have to wait 4-6 weeks before medical records are transferred. Such is the NHS.

After that bought another book to read. Is completely different to the last one I read, which was about living in Communist China in the 1990s (boom time). This one is about a small family in America trying to come to terms with the fact their daughter has completely disengaged from them and pretty much anything and how they get through it.That is if they get through it..am only 2 chapters in.

Today, another review meeting with Dad but am not interested in any more procrastination from services. His support worker was off last week and hasn't seen him this week. My stance is that he needs to go into a care home and that is it now. These txxpots can play their games but am not interested.

After that, I shall be back out in the garden with me book.

Hows things with you? Have you been out in the garden? And is Dickens enjoying the sunny weather?

Bye for now
At 8:14pm on April 21, 2009, omshanti said…
OMG Dickens. Well, it _is_ Spring...

I've never got anywhere with lectures, either. Or anything else actually. They do what they want to, that's for certain!

I saw the Entrecard announcement -- I figure I'm going to wait and see where the value settles before I do much of anything with it, but I'm excited to see how it turns out! I'm even thinking about spending a little money on paid advertising for my blog, I saw how much it helped Creative Cafe out...still thinking about that though.

Have a good dinner and be well hun!
At 5:51pm on April 20, 2009, omshanti said…
Dahling! You rock. Let us hope!

Had an okay weekend. Got about two days of rain, but we needed it and it was almost two days of snow! I think we're done with the snow now though and everything is so green.

The show I did on Saturday was really sparsely attended though, I can't blame people with the weather but I really hoped I'd make a bunch more money. Things have been slow all round and I am dipping hard into savings to pay my bills. Something's got to turn around here soon.

Loiosh is a delight as always. We had a day in the park yesterday, and he met a lot of dogs and several friendly small children, and got to climb a couple of trees. We also saw a falcon take a pigeon which was kind of gross but how often do you get to see that from twenty feet away?

Loiosh was sure he was going to go over and play with the birdies but I told him NO.

The weather's gorgeous here today but I am back to work, so much to do as always. Be well hun!

Kate
At 9:13am on April 20, 2009, Mandy Lawrence said…
Hi Jill

Can understand that it can become a burden to keep switching things on and off. Is okay, is up to me to check things out anyway.

Had better day yesterday. Even mowed me lawn which was tempting fate really...although so far no mega problems from dry discs.

Hope you enjoyed the kippers. Haven't had them for years. I love them but not the smell that lingers around my place for days after. We had tomatoe omelettes and beans. Real Sunday dinner stuff. Ha! Ha!

Going to check out that link you gave me now.

Hope your Monday is a good one.
At 10:52am on April 19, 2009, Mandy Lawrence said…
Morning Jill

Glad to see people joining the cafe and getting interactive.

At some point, I need to check out members' pages. I do miss the thingee that used to show latest activity because I am not quite sure who has posted what when anymore. I really need to pay more attention. When my mind is less addled.

Got a nasty migraine yesterday and notice it has left me with fuzzy vision today so won't be on long although want to post a funny story which was sent to me on my page.

Hope all the technical updates mean that the cafe gets to cover it's costs and if you can make enough money to do competitions and such like all the better.

Have a lovely Sunday
At 7:26am on April 19, 2009, Karen Chaffee said…
Jill, thank you for visiting my site. I love good quotes, too. Very inspirational. Thank you, too, for you generous offer of help!

Karen
At 8:03am on April 17, 2009, Mandy Lawrence said…
Morning Jill

Hope your tummy is settling down again.

Thanks for the link. Will have a play around later.

Hayley is coming round for card making. She is having to taxi here because she is still without car. The insurance people offered her £100. Cheapskates. She is using one of those 'No Win, No Fee' lawyers to try and get enough money to buy a replacement.

Have defrosted a bag of prawns because they are her favourite and going to cover them in seafood sauce and stick them in jacket tatees for lunch.

Tonight Em is round and so will be seeing Dad, although i would love to have some time where Em and me could be together. Is not doable at present because although she is on a break from uni she is covering maternity leave in the pub, has 2 assignments and was, until yesterday, swatting for her driving theory test. Which she passed. Game on.

think I will see more of her during the Summer holiday. I do miss her.

Anyway, no good crying over spilt milk. The most important thing is that she is getting on with her life.

Gonna make a cuppa then have a bath.

Hope your today is better for you. Bye for now
At 1:53am on April 17, 2009, Neil Hartley said…
Thanks for the comments Jill, and for having me here! You have some really amazing pics! Not sure about the knitting for trees though, seems a little wasteful to me...
At 3:48pm on April 16, 2009, Mandy Lawrence said…
Thanks Jill

Look forward to hearing from you?

Did you find anything nice to eat. I have been eating healthy today as yesterday I started off by having a kit kat for breakfast and then raspberry pavlova for 11zees. What with the Indian meal in the evening was total pig out of a day. Hence a wholemeal banana and reduced fat peanut butter sarny for brekky and some smoked mackerel strips (which I shared with Suki) for afternoon snacks.

The second hand shops were wonderful. Was one of those days where all the shops seemed to have things I wanted. I didn't spend much but got lots of nice things. Going to listen to one of the book tapes later, when I snug down in bed. I also changed my GP practise because have found them less and less helpful, not just with me but with Dad and Em. The new practise seems more friendly (courteous) and hoping that I get a GP I can build some sort of trust relationship with...or at least they don't treat me with contempt.

Am actually quite tired now so might have a Siesta.

Bye for now
At 9:28am on April 16, 2009, Mandy Lawrence said…
Morning Jill

I quite like the idea of playing about with my page on creative cafe. I think I will write you email as I am a bit techno useless and then you can give me some pointers.

I was getting over stressy about Dad but got to a cut off point. I think when decided to invoice. Either you have to (or be able to take) some direct action or you have to put up and shut up. That is why so many people with mental health problems get duff services, they aren't able to take any action becuse of their illnesses. Anyway, had made a concious decision not to let Dad phase me and actually, although he mostly was lying on the sofa (in corpse mode) he enjoyed his curry and I felt like it was something I could do for him without getting my feelings and mental health compromised.

He told me his care co-ordinator had rung to organise a visit wih him today. am surprised by that. She tends to say very little and do even less.

Today, am going to town with friend to pick up my prescription and have a pad around the second hand shops.

Hope the is another sunny day for us. Am loving the spring weather.
At 2:36pm on April 15, 2009, Mandy Lawrence said…
Afternoon Jill

Listening to the Nat King Cole video...I feel like jumping over the hollyhocks and gathering lilac and generally frollicking about. :>)

I am not sure about now but an old friend of mine was injected (against her will) with Lithium whilst in a secure unit. She reckons it led to her having a heart attack. The medics might argue otherwise but since she has been off the Lithium and on one daily dose of Clorpromazine she seems fine and dandy and is in her mid seventies. Things are so subjective (in regards to what actually can and does help but a toxin is a toxin whatever name they give it).

I agree with you on the Royals, only I know the British public have become so tolerant to things that I think the government could set up Marshall Law and only a few people would object. Possibly the media and a few thousand people who would stage a march and be killed by the police or maybe not them but other people going about their business that happen to be there!!!! Aren't I the optimist? Ha! Ha!

On a more positive note, I was really upbeat yesterday morning and cleaned the bed linen and went and got Dad some bits from the local shop (His support worker is on annual leave and his care co-ordinator, as ever, hasn't bothered to arrange a visit). More about that useless article later but I walked to town with my support worker and thoroughly enjoyed myself. Even did some personal shopping which was fun.

Things nosedived when I got hom and Dad rang me in a flap. the chemist hadn't delivered his meds and told him he wasn't due any till 27th. Dad is on weekly prescriptions???? I went round and his care co-ordinator had told him to ring the doctor and sort it out. I rang the Trust and asked them what exactly is the role of a care co-ordinator? I am past playing diplomacy with these people because I know they are lazy sods. Anyway, the Trust woosed out and the care co-ordinator got the arse with me and demanded to talk to Dad. He went all pussy on the phone to her so I bellowed don't blame me for this, you rung me in a flap and I came round to help. Is not my fault if people don't do their jobs.

Needless to say, he rang the GP and confused the receptionist and was told the doctor would ring him in an hour or 2 (this was at 3.30 pm). I said he needed to ring his care co-ordinator back and ask her to sort it. He did and she did but all this faffing around could have been prevented if she had just done her job.

This is the third time Dad has had problems with his meds. The 2 previous times the chemist blamed the GP, the GP blamed the Mental Health team and I had to ring and basically tell people how to do their jobs.

Is not my role but am now going to inovice the trust by doing the care co-ordinator's job by default. Perhaps hitting them where it hurst might actually make them more proactive in doing their jobs.

As for next time. Well Dad has a social services/care review meeting next week and I am going to make it clear that everytime I end up having to chase people to get a service for Dad, I will be invoicing for my time and inconvenience.

I wonder how many people are out there, ill nd confused and being left to rot? Hundreds if not more.

I am sure if I wasn't having to intervene so much, for Dad, I would feel alot happier than I do. As yesterday morning I was quite happy and able to get on and do things and after being embroiled in the mess that is support services I was stressed to hell.

Did unwind at Deb's and Skippy was a pozzie distraction. I made a veggie sausage casserole and another friend of hers popped round and we had a pretty good night.

Today, my card making supplies arrived and having and indian meal with friend and Dad tonight and intend it to be upbeat.

Hows things your neck of the woods?
At 1:42pm on April 14, 2009, Azzami Bell said…
Awfully kind of you m'dear.
At 7:41am on April 14, 2009, Mandy Lawrence said…
Morning Jill

Liking the spring decor.

Is, thankfully, a personal choice whether I take the Lithium or not. Wouldn't want to be on section and having it forced on me. Will, at some point, talk with the shrink again but these things take time. Ihave the lozees and have cut back down again so not like I am over medicating or abusing the stuff.

I have been watching the Henry VIII series. I have a mini obsession over the Tudors. Don't know why but whenever programmes are on about them, I watch them. I think Elizabeth was a pretty good monarch (considering her family history and the manipulative and violent times she lived in). I am totally anti monarchy now. I can't see the point in modern monarchy at all but it is most probably a sentimental/slightly deluded patriotism that makes the public want one. I don't get too hung up about it cos there are so many things to be hung up about these days..could drive a person, like me, even more insane.

Off to town with Support Worker later and tonight staying over with Debs. She is going through it and I want to spend time with Skippy as not sure how much longer he will be with us.

Anyway, time for a cuppa and to start getting act together.

Bye for now
At 8:24pm on April 13, 2009, Aileen Clarke said…
Hi Jill. Thanks for that. I must make more decorative hanging things.
I'm away to wrap up your picture now and post it tomorrow : )
At 5:56pm on April 13, 2009, Mandy Lawrence said…
Evening Jill

Is gonna take something mega for me to change my mind about the Lithium. Like the biggest downer I have ever had or running naked up and down the street thinking I am Britt Eckland. Ha! Ha!

My Easter was pretty mellow although got so sick of tv and the crud on it that have been playing the radio all of today. That is since I got up. was awake at 6.am and then zonked out around 8 and came to at midday.

Have managed to do housey stuff and tonight going to watch DVDs.

Sorry to hear your tummy is playing up. Is there any pattern to it? Like after you eat certain foods? It could be irritable bowel. That is pretty horrid. I get it, thankfully not too often. I use peppermint oil capsules to calm it down.

I can see why you like the scenery in Doc Martin. Is a beautiful setting. I can't be doing with him at all. Even though have only seen it the once. Shame you didn't see the episode with the guy with bipolar. Would have liked to read your slant on it. Still, we can't all like the same things. Would be very boring.

Right, am off to make myself a decaff coffee and set to work on the choccies Dad got me for Easter.

Hope you get a restful evening.

Bye for now
At 8:38pm on April 12, 2009, GiftedGrandma said…
Hi Jill...been gone all week so didn't get your message about my granddaughters pocket pals. Thanks for the comment and acknowledgment! Have a wonderful Easter...Bev

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