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At 5:27am on May 14, 2009, Alec Morrison said…
JIll,

I think about gardening from time to time, especially when I get a bonsai catalog in the mail. I did some gardening for my psychiatrist in DC. Watering plants, trimming ivy.

Mom has cancer, I was told today. So I'm self-medicating as they say in the New Speak that dominates the social sciences these days. It's a Journey, they say. I did a paper on Nixon's sponsoring of the White House Plumbers, who tapped Daniel Ellsberg's psychiatrist's phone. He released the Pentagon Papers during the Vietnam War. Long time ago. More than half my life.

Alec
At 2:28am on May 12, 2009, Kathryn Rushent said…
Hi,Jill!

Sorry I'm so slow.

Yes, winter does sometimes drag on around here. But now we're having some nice spring sprinkles, and the hyacinths are already blooming! The sun is up until after 9:30 too. Lots of sunshine! It's so nice.

Hope your garden will be absolutely lovely and afford you a lot relaxation.

I'm now working on five different novels at the same time!

Kass
At 1:44pm on May 11, 2009, Mandy Lawrence said…
Hi Jill

I think there is an element of manipulation coming from the father quarter but am reckoning that an independant (and preferably useful) advocate will cut a fair bit of that out. Certainly when it comes to dealing with MH and Social Services because whatever the problems....there are some real problems with care support and they need resolving. Typically, his social worker hasn't rung me back in regards to the double invoicing for his meals on wheels. Will ensure advocate is made aware of this and such other boob ups that need addressing.

Actually, am feeling calmer since got response from advocacy referral service who say that the advocacy for older age people wish to take his referral and are happy to deal with both the social and MH care side of things. Bring it on.

My relationship with Dad should be more like yesterday, where I provided the cake and Scrabble board and we ate and played and chatted quite happily about the game and other non stressy stuff.

Am now waiting for my support worker to turn up. I need to get to town to get the money for the annual zoo ticket and to buy some 'pure' washing powder because I think Dad might be allergic to the chemicals in normal powder. Yes, still playing Mum in some respects but sorting his washing is one thing I can do, without getting a migraine and nosebleed. :>)

No worries on when the card arrives. I often struggle to get outside and am then reliant on others to help. So I appreciate your situation and will be more than happy to get the card as and when.

Okey dokey. I better head off, Josie will be here soon and then I am going walkies.
At 10:53am on May 11, 2009, Alec Morrison said…
JIll,

Sounds like me. I started smoking in Oslo at the age of 14 or 15. In those days I could only afford to smoke about 3 cigarettes a day. But I gradually crept up to a couple of packs a day. I'd like to cut down, but I have a habit of reaching for my pack without thinking. What with the rising price of tobacco, smoking would be an insane habit to start. I think the gov't has taken over tobacco now here. I pay $60 a carton. Way too much.

Alec
At 8:26am on May 10, 2009, Mandy Lawrence said…
Hi Jill

It is about constantly being on the case with MH services, which sort of defeats the reason they were created, which, I assume, was to provide the right care for all who need it (not just those who can navigate around the systems and intellectually stay on boad with the games that are played).

I have contacted another advocacy service for Dad this time. He is in agreement, although his support worker has told him advocacy is rubbish. Mind you, she forget to be honest about the organisation she works within. He has told me that support worker said she would be bringing round a pre-typed letter next week (contents of which say that Dad is happy with the care he has been given). I asked him what he thought of that and he said he thought MH services were trying to drive a wedge between us. I said that considering how long it has taken for me to get what there is in place for him, it seems inappropriate. The problem with Dad is he will moan at me when things don't get done but won't say anything in front of these people. He is scared of them. That is why he needs an advocate and as I no longer have the energy to play devil's advocate is about time someone else did...I fear the worst really because Advocacy is another bureaucracy...but what else can I do. I have to take a step back. If only I had one the euro millions I would be paying for the most astute lawyer and sue for damages to my mental health.

anyway, have ranted on and what will be will be. Is time to try and look after me for a change.

another blogger has a post up about bee-keeping. They have built a DIY bee hive and if I can get all teh bits and pieces and in the right order am going to try and make one of my own. Gotta try and save the bees.

Bye for now
At 5:34am on May 10, 2009, Gary Tipping said…
Thank you for your friend invite and your kind comments on my music video 'Broken'
At 4:18am on May 10, 2009, Christopher Stewart said…

Hey ! Thanks for the comment... :o)

Hope you have a peaceful Sunday...

Take care,
Chris

At 9:05am on May 9, 2009, Mandy Lawrence said…
Morning Jill

Glad you have managed to get another assessment via your complaint. I spend too long on the phone to social services last week...due to paperwork about Dad's meals on wheels (think they are double charging him). I also wanted to comment on what his social worker had said to me but strangely, no one was available to talk to.

I have contacted a different advocacy service because I can longer advocate for Dad and have been compromised too much when I have. Not sure what the advocacy service will do but I need time out. Am planning a stay away at the end of May by the seaside.

Is my birthday Thursday but not sure quite what I am going to do that day. A friend and I are hoping to buy an annual ticket for the zoo and go there during the week. That will be, for me, a reat treat and am seeing Em on Friday.....and get a take out. Apart from that, I don't want to do the heavy celebration thing.

Enjoy your weekend.
At 12:33am on May 9, 2009, Alec Morrison said…
Got some work done on my lower denture yesterday. I guess my gums are shrinking somewhat now that all the teeth are gone, so the lower one fits better now the work has been done. I don't know about the quilt project. I was excluded from the animation process, so I'm taking a quarter of Calculus. I'll have to check that project however. See how everyone is doing. Thanks for thinking of me. I have trouble breathing sometimes, but I'm a heavy smoker. Do you smoke? Hope the breathing gets easier for you.

Alec
At 4:09am on May 8, 2009, Christopher Stewart said…

Hey Jill ! Thanks for the welcome & request... happy to connect ! :o)

Never been to the UK yet... but hopefully will do sooner or later...

Yep, I write all them blogs... I used to write daily, but I'm not much into blogging these days... it comes and goes...

Love and light,
Chris

At 7:14pm on May 7, 2009, Mandy Lawrence said…
Evening Jill

Can't remember if I responded to your last posting. Been a bit of a rough few days. On new migraine medication which is affecting my moods. When I checked the side effect leaflets it said caution should be taken when using tranquillisers and medication can give people mood swings. Whoopie doo!

Actually apart from maybe not knowing enough about the migraine medication she prescribed my new GP is much better than my other one. In that she wants to start from scratch. Do blood tests for herself (as the other results are once again missing in transit) and wants a double appointment with me next time to go through certain issues I have.

Is too painful for me to write about Dad at present. I did a blog posting early yesterday and feel disinclined to write anything more about that.

The good bits are that I went and stayed with Debs and her goats last night. Skippy is doing much much better. So much better that he literaly jumped over a chair to get to the bananas in a bowl on the window ledge...so it seems his arthiritis is responding to the anti inflammatories and I am pleased as punch about that.

We also partook of a delish Chinese meal.

Today we walked to the local shops (with Sally, a 16 year old Westie). It took us about an hour to get there because Sally is not only going blind and is slow but wanted to stop and smell everything on the way). I didn't mind. I wasn't in any rush. Well, they had a house clearance place there and I picked up 3 dvd's, all in top condition, for £1 each. One of them is "Kill Bill" a film I have been itching to see for ages.

So that is my weekend wrapped up.

I also got a letter from Richard and he seems in fine spirits, which is great to read about.

Hows things with you?
At 4:25pm on May 7, 2009, GiftedGrandma said…
Hi Jill, Thank you for the wonderful comment on my fabric dolls and featuring them on the main page! I am in the process of making a summer elemental doll (first ever) will put into album when done. Have a wonderful day. Bev
At 7:59am on May 6, 2009, Mandy Lawrence said…
Hallo Jill

Have been having more problems with my emails. Spent too long on phone to Virgin Media techical support, who ended up saying that they had not been trained to deal with the Microsoft Vista email and couldn't help me with my problem. They did show me how to access my emails via the Virgin Media webpage but am sick to death of Virgin actually. They charge so much and do so little. Will ring friend later who uses Talk Talk and ask them how I can change because a combined bill of £115 for one month of services (when actually the technical support is pants) is far too much. You know I pay £19 for broadband. Gonna vote with my feet. Which is always the best way.

Could you kindly send me another email, so I can access it through the webpage and then I will respond to the previous mail? Ta muchly.

I think I might just join Twitter. Not so much for the networking. Am really useless at that sort of thing but more to find out stuff such as you wrote about the PM's wife. As in stuff that I wouldn't find out anywhere else. Am not interested in the celeb following cult that tends to go with some of these networks or getting alot of 'so called' friends that only add you as a friend to build up their butterly collection. Can't be doing with that side of it.

Am chuffed this place is getting lively. Hopefully that will mean more blog posts and stuffs of interest. Will check out the main page for updates.

Anyway, as I have been video swapping with Azzi....videos with some loose reference to what has been posted...here is one with links to what I have written. Know you are a Paul Weller fan:


Bye for now
At 10:12pm on May 5, 2009, Regina Sunderland said…
Hello Jill,

thank you for the welcome. Most gracious I must say. I have added a few items to my Profile and fixed the URL. I had it a bit backwards... rolls eyes at herself.

Regina
At 9:30pm on May 5, 2009, Kathryn Rushent said…
Hi, Jill,
No,I don't have a ventilator, just the usual inhalers. I think I'll be "upgrading" soon though.

You had the hottest April on record, and hilariously we had the snowiest! Right now we're having a great thunderstorm. The tulips, hyacinths, and daffodils are probably relishing the downpour.

Hope your garden thrives and that you and Dickens have many more sunny days this year to enjoy it in!

Kass
At 11:07pm on May 3, 2009, Anne Parkhill said…
Hi Jill,
Please feel free to call me Annie almost everyone else does. Thank you so very much for your glorious comments on my zazzle site. The words for the mugs just flow out of my head. I am an advocate to those with Mental Health Challenges and try to inspire them to become more empowered. I do believe there is a giant stigma attached to Mental Health Disorders, hower, as we all become rich in our faith, more empowered and not afraid of telling others, we not only help ourselves but we reach out to othes as we..
Hugs Annie
At 6:50pm on May 3, 2009, Kathryn Rushent said…
Hi, Jill,
Sorry I've been rather quiet; I've been really under the weather with my asthma lately. I'm certain it's because of mold in our house. We can't afford abatement, but hopefully we'll get to move soon.

The book's going great though! About 40,000 words in third draft form now.

How are things there?

Kass
At 9:17am on May 1, 2009, Mandy Lawrence said…
Hi Jill

Finally got use of me email back. Techy problems that have taken Virgin media 2 days to sort. Am changing phone and broadband supplier anyway because my bills are too expensive and can get better deal from Talk Talk.

Isn't it just typical that vulnerable people have to jump through hoops to get care? Unless you can constantly on the case you are forgotten. It isn't right at all Jill but nationally no one gives a stuff and I think, for most individuals, they are either too ill or too busy trying to stay on a level to keep fighting for better services.

I have spoken to a couple of people that say that their CMHTs are getting people off their books...under the remit of 'moving people on'...is okay if people have places to move on to and are well enough. I always thought the 'Recovery Model' was going to be used as an excuse to cut services. Although, there are times when I hate to be proved right. I would much rather have been wrong and for decent services to be there for people who need them.

Good luck with all your wranglings with Mh services and although it is a shame you are having to go on a transfer list (I know you love your home and have settled in) if that is the only way for you to be able to fully access your home then that is what has to be done. I still think being provided with a stair lift would have saved you alot of discomfort and most probably saved the money that will be wasted on bureaucracies by the time you move. False economy by the system isn't it?

Hope you enjoyed your tv viewing yesterday. What did you watch? I saw Jeremy Paxman on 'Who Do You Think You Are?' I like him...I know he is quite abrupt but at least he isn't pretencious. In fact I think I like him because he doesn't put on an act. Yep, I deffo do. :>)

Going to GP with Dad. Some physical probby. Has been nightmare getting to this point and needless to say his support worker not around to help. also the place we were going to look at hasn't got any flats available but he told me that his support worker said there was another place (no one has any idea where) that has accommodation available. And so we rattle on, as the cogs grind against each other (mostly in reverse).

Bye for now
At 8:02am on April 29, 2009, Mandy Lawrence said…
Morning Jill

I feel for you in regards to the assessment. I think is similar situation with most people when dealing with these services. They offer a few things that help a bit but don't really help that much. The MH and Social Services also play ping pong. One service will tell you to talk to the other service and then they pass you back again.

I am still waiting for the information on Direct Payments for Dad's care needs. Will chase his care co-ordinator up but she is ineffectual. She always says she is going to do things and then doesn't. Am keeping list of every time she doesn't do anything so can add it all to formal complaint and invoice.

I gather is alot of paperwork and you not only have to put a written justification together (which isfair enough) but you then have to write a job description and interview people and do a book-keeping exercise of the money you get and where it is spent. Actually, some of us who have worked with big bureaucracies are used to that..although I hate it and when I am low myself not sure I will be able to keep on top of things and can you imagine what it is like for people who aren't particularly literate? Is like you have to be a human resources department to get Direct Payments. Still, it is worth trying for, particularly as it could lead to getting the care when you need it. I think I am going to try for it, so Dad gets care support through the day although applying for it is no cert that he will get it.

I think it would be far more sensible and practical for social services to get you a stair lift. I thought the government directive was to keep people in their homes....moving them about is not really condusive to mental wellbeing and incredibly difficult when you have physical problems too.

These systems, I think, are being run to prevent people accessing care rather than making it easy for people to get care.

My friend has only just got DLA. She has MH problems and a cronic neck injury and for years...here applications were rejected. Only now, since her GP did a full statement regarding the MH and physical problems have the DWP clocked how disabled she is.

It is always the vulnerable that are squeezed and often to breaking point.

Anyway, you keep at 'em Jill. Cos what they really want is people to give up so they don't have to do anything.

You know Debs with the goats. Well she saw her psychiatrist yesterday and was told that she has been 'signed off' from MH services. The shrink told her that they are now only seeing people for 3 months. Thankfully, I am not with that team. However, I wonder if this is something that is happening nationally.

I think if I hadn't got my MP involved, maybe my CMHT would have tried to get me off their books before. Don't you wonder sometimes who is the more crazy? The services or the patients?

Anyway, I hope you get the call backs you were promised...followed by proper care support.

Today is friend's birthday. I am cooking them a meal later. Have got some profiterols in too. Haven't eaten those for a long time and love them. Yum.

Right, heading off to make a cuppa and then start surfing the net for a card stand.

Bye for now
At 2:18pm on April 28, 2009, Rebecca D King said…
Hi Gill, thank you for the welcome comment. Very glad you liked the poem Serenity and that you took the time to visit my site, thank you.
First Person Plural is a national org for people who suffer dissociation and Involving Service Users is a Norfolk based group. There is a lot to offer on this site, and I am sure I will find my way round soon.
Look forward to hearing from you.
Rebecca

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